Endometriosis Awareness

The Center for Endometriosis Care , Atlanta, Georgia     Ask Me About My Endo has a list of advanced excision specialists. Facebook group, Nancy's Nook Endometriosis Discussion and Education has a list of doctors. Nancy is a retired nurse who worked with Dr. Redwine from endopaedia.com She runs this FB group as a supportive and educational place for women with Endo. My Endo surgeon, Dr. Patrick Yeung I'm open to any questions I might be able to help you with!

My sister helped me create this video. I have to say I have never talked on camera. I didn't feel very organized. I felt a bit (a lot) scatter brained! I hope I didn't misquote or misrepresent any of the accurate information out there, but that's where the resource links come in! Use them! :) Thank you for watching and feel free to share.  Thank you to the Poppy Projects

You might wonder why I post a lof of resources from Dr. Yeung. For one, the information he presents is highly educational and yet simple, clear, and concise. Secondly, he's the doctor who did my surgery and I'm confident he knows what he's talking about! ;) Dr. Yeung short video Endo FAQ with Dr. Yeung

I had a very extensive surgery in October to address what turned out to be the most severe stage there is, stage 4, of Deeply Infiltrating Endometriosis (DIE). I was in surgery for 7 hours. This included calling in a colon surgeon to do a bowel resection where they had to take out 6 cm of bowel tissue that was overcome by Endo lesions. This disease is REAL folks (not that you were doubting)! The good news is that there are a handful of doctors around the country who are performing very effective surgeries to "excise" or "cut out" the Endo lesions. Ask me about it if you are looking for resources. I always hoped but found it hard to imagine that I would ever feel better. I feel completely different after my surgery to the point I had no idea it was possible to feel this good! I am looking ahead to this new year as a new start in life. I can't look behind me and grieve the lost days and years of my life to debilitating disease, because looking into the days, wee...

AAGL 2011 - Patrick Yeung, MD Here's an excellent video with crucial information for young women with Endo. There's hope and help for this disease when you get to a doctor who knows what to do!

Here's the most clear, concise and easy to understand video on Endometriosis I have seen yet. In my opinion, after watching this video you will know all the important points about this disease and its most effective form of surgical treatment. Patrick Yeung, MD on Endometriosis

“Never doubt that a small group of thoughtful, committed people can change the world.  Indeed, it is the only thing that ever has.” -Margaret Mead The part of "My Story" that I'm most interested in sharing will be my long over-due and upcoming treatment for Endo. I've been in touch with The Center for Endometriosis Care (aka the CEC) in Atlanta, GA. and world-renowned surgeon, Dr. K Sinervo. The path that brought me here was a slow one. It took my about 8 years of my own research to find out there's something more than the highly ineffective run-of-the-mill treatment for Endo, and it's actually accessible to me. Stay tuned.

Endometriosis Research Center   The following is an advance copy of the speech Nancy was slated to give at an advocacy event in Washington, DC in 2014. Unfortunately, Nancy will be unable to present in person, but we thank her for generously allowing us to nonetheless share her important words with the world. "When I was diagnosed in 1969, I had pain and one hospitalization after another for 17 years - without a diagnosis.  I did, however, experience multiple scoldings about pelvic exams ‘not really hurting’ as I tried to exit the exam table with the ratcheted speculum still in place and some psychological dismissal because after all, it’s ‘just her period.’ Today, 44 years later, instead of prompt diagnosis and prompt treatment, we see diagnostic delays averaging 9 years.  Nine years of pain, psychological dismissal, and disregard of severe pelvic pain.  We have not come very far at all. Making things worse - some are advocati...