Endometriosis Awareness

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I was reading this article from People . What Padma Lakshmi has to say about her life with Endometriosis resonates with me for so many reasons. “I had to stay home several days a month from school. I missed a week of my life for 23 years.” What she said. ^^^ I had one week blocked out on my calendar every month. After too many years of being stopped dead in my tracks by painful periods I learned to plan my life around that week every month.  “I wanted to raise awareness so that no young girl has to wonder what is wrong with her like I did for so many years,” she says. Yep, exactly what she said. ^^^ “I was told I would never have children naturally, that I only had a 10 to 15 percent of having them in vitro,” she recalls. “When you’re staring down the barrel of your 40th birthday and you hear that you can’t have kids because this disease went unchecked and undiagnosed for so many years, it’s devastating.” ^^^ Yes! This is such a key point. Advanced ...

The Center for Endometriosis Care , Atlanta, Georgia     Ask Me About My Endo has a list of advanced excision specialists. Facebook group, Nancy's Nook Endometriosis Discussion and Education has a list of doctors. Nancy is a retired nurse who worked with Dr. Redwine from endopaedia.com She runs this FB group as a supportive and educational place for women with Endo. My Endo surgeon, Dr. Patrick Yeung I'm open to any questions I might be able to help you with!

My sister helped me create this video. I have to say I have never talked on camera. I didn't feel very organized. I felt a bit (a lot) scatter brained! I hope I didn't misquote or misrepresent any of the accurate information out there, but that's where the resource links come in! Use them! :) Thank you for watching and feel free to share.  Thank you to the Poppy Projects

You might wonder why I post a lof of resources from Dr. Yeung. For one, the information he presents is highly educational and yet simple, clear, and concise. Secondly, he's the doctor who did my surgery and I'm confident he knows what he's talking about! ;) Dr. Yeung short video Endo FAQ with Dr. Yeung

I had a very extensive surgery in October to address what turned out to be the most severe stage there is, stage 4, of Deeply Infiltrating Endometriosis (DIE). I was in surgery for 7 hours. This included calling in a colon surgeon to do a bowel resection where they had to take out 6 cm of bowel tissue that was overcome by Endo lesions. This disease is REAL folks (not that you were doubting)! The good news is that there are a handful of doctors around the country who are performing very effective surgeries to "excise" or "cut out" the Endo lesions. Ask me about it if you are looking for resources. I always hoped but found it hard to imagine that I would ever feel better. I feel completely different after my surgery to the point I had no idea it was possible to feel this good! I am looking ahead to this new year as a new start in life. I can't look behind me and grieve the lost days and years of my life to debilitating disease, because looking into the days, wee...

AAGL 2011 - Patrick Yeung, MD Here's an excellent video with crucial information for young women with Endo. There's hope and help for this disease when you get to a doctor who knows what to do!